Support Groups

In the summer of 2010 Partners in Care committed to maintaining a list of pediatric support groups throughout the Province of British Columbia.  We will be looking to keep this updated so if you know of any corrections that need to be made or any groups that can be added, please contact us.

Family Support Institute
A province-wide organization whose purpose is to strengthen and support families faced with the extraordinary circumstances that come with having a family member who has a disability. Directed by families, the
Family Support Institute provides information, training and province-wide networking to assist families and their communities to build upon and share their strengths.
Phone: 1.800.441.5403
Website: http://www.familysupportbc.com/

Parent Support Services of BC
Provincial Office (Burnaby)- Phone: 604.669.1616
Victoria Office- Phone: 250.384.8042
Central Island Office (Nanoose Bay)- Phone: 250.468.9658
Price George Office- Phone: 250.561.0607
Website: http://www.parentsupportbc.ca/

Metro Vancouver

ABA Support Network
Improves access to quality Applied Behavioral Analysis (ABA) treatment and support in the home and in the community for children, youth and adults with autism.
Website: www.abasupportnetwork.com
Tel: 604.597.8909

Autism Society of BC — North Shore Chapter
A support group for families living with autsim on Metro Vancouver’s North Shore
Email: asbcnorthshore@yahoo.ca

BC Hands and Voices
A parent-driven, non-profit organization dedicated to supporting families with children who are deaf or hard of hearing.
Website: http://www.bchandsandvoices.com/
Email:  info@bchandsandvoices.com

BC Turner Syndrome Network Vancouver Chapter
Provides information and support to families and girls affected by Turner syndrome in British Columbia.
Email: yasdaz17@fastmail.fm
Tel: 604.434.7457

Burnaby BACI Chinese Autism Parent Support Group
本拿比BACI自閉症家長互助小組
The parent group helps to develop services and support for autistic persons and to raise the awareness of autism in Chinese community.
該會宗旨是為自閉症患者提供信息和服務資源,並提高華人社區對自閉症的認識
聯絡人:曾先生 (國粵語)
電話: 604-928-8289
Email: john_tsang2000@yahoo.ca

Children’s Heart Network Coffee Groups
The Children’s Heart Network has a few coffee groups run by Heart Moms and they would love for you to join them and other Heart Moms for coffee. This is a great way to chat with other parents and share our experiences with congenital heart disease! Please email us to find out about Coffee Groups in Richmond, Vancouver and Langley:
General Email: chn@childrensheartnetwork.org

Circle of Moms (Online)
An online site to unite families who have /know a special needs child in Metro Vancouver Area. Share stories, tips, struggles, provide support. Arrange meet ups etc.
Website Link: http://www.circleofmoms.com/special-needs-families-in-metro-vancouver-area-bc

Crohns and Colitis Discussion Group
For parents of children with Crohns, Colitis and/or Inflammatory Bowel Disease (IBD).
Email: vancouver@ccfc.ca
Register at http://www.meetup.com/crohns-colitis-discussion-groups-BC/
Telephone: 604.803.4213

Down by the Bay Support Group (Surrey)
Email: humminglady@gmail.com

Down Syndrome Parent & Family Resource Group — Langley
Email: mackaypotter@gmail.com

Learning Disabilities (LD) Association Parent Support Group
For parents of children with learning disabilities.
Email: info@Idav.ca
Website: http://www.ldav.ca/
Tel: 604.873.8139

New Westminster Youth Centre: A Social Life
For parents and kids (14-24 years of age) with intellectual/developmental disabilities
March 13th- June 12th, 2011: 2nd and 4th Sunday’s
Email: asociallife@yahoo.com
Phone: 604.765.9784

REACH Child and Youth Development Society
A non-profit organization,  currently serving the communities of Delta, Surrey and Langley, B.C. We offer a variety of services designed to meet the needs of children to ensure their optimum development. Services include Parent Support Network and group meetings.
Phone: 604.946.6622
Email: info@reachdevelopment.org
Website: http://reachdevelopment.org/

Rett Syndrome Society of BC
Supports, educates and empowers those that live with Rett Syndrome and their families.
Website: http://rettbc.ca/
Email: info@rettbc.ca

Richmond Autism Parent Support
Provides information and support to families affected by Autism.
Email: galblas@shaw.ca or tkulusic@shaw.ca
Brochure (pdf)

Richmond Autism Parents Support (RAPS)
Provides information and support to parents of children with autism.
Website: http://www.rapsupport.org/
Email: richmond.autism@gmail.com

Richmond Centre for Disability (RCD) Chinese Support Group
我們的使命是為殘障人士提供資訊和資源,提高社會對他們的認識,使他們得以按照本身的意欲和能力,投入整個社區的生活
网站: www.rcdrichmond.org

Rising Up for Downs (Burnaby)
Email: humminglady@gmail.com

Tourette Syndrome Foundation of Canada (TSFC)
Greater Vancouver Chapter. Provides information and support for families and individuals coping with Tourette syndrome.
Email: vancouvertics@hotmail.com

The F.O.R.C.E. Society for Kids Mental Health
Provides support, education and advocacy and navigation for children with mental health difficulties.
Phone: 604.878.3400 or 310-6789
Email: theforce@bckidsmentalhealth.org
Website: http://forcesociety.com

Tri-City Autism Support Group
Provides support for families and caregivers working with people affected by Autism.
Phone: 778-229-9066
Email: outofmymind@shaw.ca

Upside Down Playgroup
A part of the Down Syndrome Support Network, located in Vancouver.
Email: tburleigh@shaw.ca

Vancouver Parents Transition Group
An education and support group for parents of youth with disabilities who are transitioning to adulthood. The group meets once per month and features guest speakers who provide information and support to families.
Website: http://vptg.wordpress.com/
Email: transitionparents@gmail.com

Westcoast AIS-DSD Support Group
Helping those with AIS (Androgen Insensitivity Syndrome) and other DSDs (Disorders of Sex Development)
Email: cbohlen@shaw.ca

Fraser Valley

Abbotsford’s Juvenile Diabetes Network
Support group for parent with children who have Type 1 diabetes
Email: AbbyJDN@shaw.ca
Tel: 604.852.6770

Fraser Valley Down Syndrom Support (FVDSS)
A branch of the Lower Mainland Down syndrome Society.
Parent Evenings, second Thursday of the month
7:30pm at Plaza 154 Ventura Ave, Abbotsford
Website: http://fvdss.org/
Email: fvdss@telus.net
Phone: 604.755.0769

Fraser Valley FiT Network Society
A social/educational network for families who have children with special needs. Bridging the gap between families with special needs children and the high demand on community resources & providing a place where parents can network, educate themselves as well as each other, and connect.
Website: http://fitnetworksociety.com/
Email: fitnetwork@live.ca

Mission Parent Support & Networking Group
Connect with other parents of kids with special needs at monthly meetings, learn about community resources and listen to guest speakers.
Website: http://svunlimited.com/macl/?id=1027&category=Services
Email: Kathy.reeves@macl.bc.ca
Tel: 604.826.9611 ext 228

The F.O.R.C.E. Society for Kids Mental Health
Provides support, education and advocacy and navigation for children with mental health difficulties.
Phone: 604.878.3400 or 310-6789
Email: theforce@bckidsmentalhealth.org
Website: http://forcesociety.com

BC Interior

BC Prader-Willi Syndrome Association
A non-profit charity that provides an understanding and awareness of Prader Willi Syndrome by supporting those who have the syndrome, their families and all who come in contact with PWS.
Website: http://bcpwsa.com/
Email: info@bcpwsa.com

Families in Touch (FIT)
Part of the Association for the Benefit of Children with Disabilities (ABCD)
Provides support for parents, relatives and friends of people with any kind of disability.
Email: Familiesintouch@shaw.ca
Telephone: 250.763.4663

Osoyoos Autism Behavioural Centre Parent Support Group
A home base for families in the Osoyoos and surrounding areas living with Autism Spectrum Disorder.
Facebook: https://www.facebook.com/OsoyoosABC
Email: kimlayman@hotmail.com

The F.O.R.C.E. Society for Kids Mental Health
Penticton Branch. Provides support, education and advocacy and navigation for children with mental health difficulties.
Phone: 250-488-3733
Email: pentictonforce@gmail.com
Website: http://forcesociety.com/

Kootenays

Revelstoke Family Support Group
Provides support and information for families with children with special needs.  Serves Malakwa and Nakusp as well.
Email: jmcnab@community-connections.ca

Supportive Parents Educating and Advocating for Kids (SPEAK)
An informal group of parents who have kids with special needs. Based in Nelson.
Website: http://speakgroup.wordpress.com/
Email: Rednettodd68@live.com

Vancouver Island

Autism Society of BC: Mid-Island Community Support Group
Provides support for families and professionals affected by Autism.

Meets on the mid-island (usually Nanaimo)
Email: midisland.asbc@gmail.com
Website: http://www.nanaimoautism.org/

Greater Victoria Down Syndrome Society
Serves the developmental, social and emotional needs of individuals with Down Syndrome and their families.
Website: www.gvdss.ca

Children’s Heart Network
Headquartered in Victoria but serves the whole province.  Support and education for families with children with congenital heart disease.
Telephone: 250.598.7524
Email: chn@childrensheartnetwork.org
Website: http://www.childrensheartnetwork.org

The F.O.R.C.E. Society for Kids Mental Health
Provides support, education and advocacy and navigation for children with mental health difficulties.
Phone: 250-479-1192 or 604-878-3400
Website: http://www.forcesociety.com/

Tourette Syndrome Foundation of Canada (TSFC)
Victoria Chapter. Provides information and support for families and individuals coping with Tourette syndrome.
Email: Victoriats@pacificcoast.net

Sunshine Coast

Autism Society of BC — Sunshine Coast Group
Provides support for families, caregivers, teachers and other professionals affected by Autism.
Email:ccooper@dccnet.com
Telephone: 250.885.8809

Gibsons Family Network
A non-profit charitable organization with a vision of helping people with disabilities to find meaningful, integrated employment and support within our community on the Sunshine Coast.
Website: http://www.gibsonsfamilynetwork.ca/
Email: gibsons@gibsonsfamilynetwork.ca

The F.O.R.C.E. Society for Kids Mental Health
Provides support, education and advocacy and navigation for children with mental health difficulties.
Phone: 604-740-8900
Webite: http://forcesociety.com/